Cancer Advocacy, Patient Engagement & Survivorship

Helping teams connect healthcare information with patients’ everyday lives

I’m a patient advocate, patient advisor and certified health & life coach with an MBA in Marketing and a background in healthcare consulting, market research and healthcare software.

I bring experience from both sides of healthcare: working with healthcare organizations and navigating multifocal invasive lobular carcinoma as a mother of three.

My focus is a gap I’ve experienced personally and encountered through survivor coaching:

Patients receive information—but are often left asking, “Now what?”

I help teams identify missing questions, confusing choices and practical barriers so information, resources and tools reflect what patients need to understand, decide and manage.

Who I can Support

  • Cancer nonprofits and patient communities developing education, resources and survivorship support.
  • Academic and research teams seeking patient input on priorities, materials and participant experience.
  • Healthcare, life-sciences, health-tech and medtech organizations developing patient-facing information, programs and tools.

How I help

  • Patient advisory input: Bring lived patient experience together with my marketing and healthcare background to help teams understand patient priorities, question assumptions and identify gaps in programs, services and resources.
  • Patient education and communication: Review whether information answers patients’ actual questions, explains choices clearly and helps them understand what comes next—especially when they are overwhelmed or facing difficult decisions.
  • Co-creation and patient feedback: Contribute structured feedback on early concepts, websites and patient-facing tools, drawing on both patient experience and my previous work with healthcare customers and solution adoption.
  • Survivorship and quality of life: Bring attention to what recommendations require in everyday life: managing side effects, limited energy, parenting, work and financial pressures. My lived experience and survivor coaching inform this perspective.
  • Research advocacy and patient priorities: Available to contribute patient questions, perspectives on meaningful outcomes and practical participation burdens to research discussions, supported by Project LEAD® training.
  • Workshops, facilitation and speaking: Translate survivorship experiences and coaching concepts into clear, practical education that helps people explore priorities and realistic next steps.

Selected Roles & Contributions

  • Patient Expert Advisor — University of Michigan Medical School: Contribute patient feedback to the development of a website about contraceptive care after breast cancer for younger survivors, reviewing content for clarity, relevance and real-life usefulness.
  • Young Advocate & Contributor — Living Beyond Breast Cancer: Completed advocacy training and contributed patient education on reconstruction, survivorship, and sexual health (Read my reconstruction article)
  • Survivorship Coach & Workshop Facilitator: Provide 1:1 coaching and created a practical workshop addressing recurring challenges such as information overload, decision fatigue, limited capacity, and turning recommendations into sustainable action.

Survivorship Workshop

Lots of Recommendations: Now What?

This workshop was developed from recurring needs I identified through one-to-one coaching with cancer survivors.

Participants work on:

  • Identifying what is keeping them overwhelmed or stuck
  • Separating meaningful priorities from competing “shoulds”
  • Deciding what matters most now Creating realistic next steps
  • Building routines that fit their energy, responsibilities and lives

The workshop combines lived experience with health and life coaching and behavior-change tools. It can be adapted for cancer nonprofits, patient communities, survivorship programs, and healthcare organizations.

Selected Media & Advocacy

My patient and survivor perspective has been featured by:

Patient Guide

Breast Reconstruction: What’s the Deal?

A visual, real-life guide to navigating breast reconstruction after breast cancer.

Created to help women:

  • Understand their reconstruction options
  • Formulate more informed questions
  • Prepare for conversations with their healthcare teams
  • Approach decisions with greater clarity and confidence

Understand your options. Ask better questions. Feel more prepared.

Interested in Collaborating?

Looking for patient input on a resource, program or tool—or practical survivorship education for your community? Let’s discuss how I could contribute.